Dementia UK is a charitable organisation in the United Kingdom.[1][2] It aims to support those living with dementia and their families, primarily through their specialists nurses, called Admiral Nurses.
As of 2022, they have 376 Admiral Nurses working throughout the UK.[3]
History
A specialist training program was initially set up in 1988, before the first Admiral Nurses were appointed in 1990 at the Middlesex Hospital. This eventually resulted in the establishment of the Dementia Relief Trust in 1995, later to be renamed Dementia UK.[4]
The project was started by Ninot Levy and Jane Jason, wife and daughter of property developer Joseph Levy CBE BEM, who was diagnosed with vascular dementia in the 1980s and was inspired by the specialist support given by Macmillan Nurses to those with cancer.
The name Admiral Nurse was derived from Joseph Levy's nickname of ‘Admiral Joe’ due to his love of sailing.[5]
Organisation and governance
Dementia UK is registered in England and Wales as a charity and a company limited by guarantee. It is governed by a Board of Trustees, of which the current chair is Professor David Croisdale-Appleby.[6] The current Chief Executive is Dr Hilda Hayo.[7]
Original founder Jane Joseph, now holds position of Honorary President.[8]
Activities
Through its work, Dementia UK aims to provide support to those living with dementia, as well as their families and carers.
Admiral Nurses
The Admiral Nurse program is the charity's primary offering, providing specialist dementia nurses to those that require support.
Admiral Nurses work in NHS hospitals, care homes, hospices, GP practices, as well as throughout local communities.
Dementia Helpline
The Dementia Helpline is a freephone telephone number, staffed by Admiral Nurses, designed to offer advice and support to those caring for people with dementia. The phone line is open 7 days a week, including bank holidays, expect for Christmas Day.[9]
Virtual Clinics
Virtual Clinic appointments lasting 45 minutes are also provided Admiral Nurses, intended to help people understand a dementia diagnosis and learn how to provide effective care and support.[10]
Young Dementia Network
The Young Dementia Network was established in 2016, before being absorbed into Dementia UK, following a merger with YoungDementia UK in November 2020. It is intended to provide opportunity for knowledge share, campaigning and collaboration between professionals and those affected by young onset dementia.[11]
Lived Experience Advisory Panel (LEAP)
The Lived Experience Advisory Panel is a group of people living with dementia and their carers, who regularly meet in order to feedback into and help form policies and practices of Dementia UK, from their own personal experiences.[12]
Ambassadors
Dementia UK works with various celebrity ambassadors to promote their causes. These include:[13]
See also
References
- ^ "Dementia UK, registered charity no. 1039404". Charity Commission for England and Wales.
- ^ https://www.bbc.co.uk/programmes/b09jlbg8
- ^ "Our strategy and annual reports". Dementia UK. Retrieved 29 June 2023.
- ^ "Beyond grantmaking | Joseph Levy Foundation". www.jlf.org.uk. Retrieved 29 June 2023.
- ^ Aldridge, Zena; Oliver, Emily; Gardener, Hannah; Dening, Karen Harrison (2 September 2020). "Admiral Nursing—A Model of Specialist Dementia Care in Acute Hospitals". SAGE Open Nursing. 6: 2377960820952677. doi:10.1177/2377960820952677. ISSN 2377-9608. PMC 7774376. PMID 33415301.
- ^ "Board of Trustees". Dementia UK. Retrieved 29 June 2023.
- ^ "Our Senior Leadership team". Dementia UK. Retrieved 29 June 2023.
- ^ "Honorary President". Dementia UK. Retrieved 29 June 2023.
- ^ "Admiral Nurse Dementia Helpline". Dementia UK. Retrieved 29 June 2023.
- ^ "Book a clinic appointment". Dementia UK. Retrieved 29 June 2023.
- ^ "What is the Young Dementia Network?". Young Dementia Network. Retrieved 29 June 2023.
- ^ "LEAP (Lived Experience Advisory Panel)". Dementia UK. Retrieved 29 June 2023.
- ^ "Dementia UK Ambassadors and Celebrity Supporters". Dementia UK. Retrieved 29 June 2023.
